tag:blogger.com,1999:blog-4957022463353443812.post2112561701726287553..comments2023-11-02T02:28:20.176-05:00Comments on *Live*Laugh*Love*Breathe*: Not Off to the Best StartColleenhttp://www.blogger.com/profile/18246468485698360524noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4957022463353443812.post-60143504118231264762012-01-08T09:07:22.414-06:002012-01-08T09:07:22.414-06:00Ronnie - Yeah, I feel like I'm reading about a...Ronnie - Yeah, I feel like I'm reading about a lot of cysters and fibros who are going through similar things. I backed off the treatments for a couple days, but now I'm back on and my cough is very productive - hope to get it all out! <br /><br />Laura- YES, I hate that you can't take the Cipro with any type of dairy or calcium because that's all my morning is filled with - a giant bowl of cereal, and my daily vitamins including two calcium pills. I try my best to take the first dose at lunch (10:30am at work) instead. <br />I was going to write about that in the post as well, but I figured it was long enough and I didn't want to seem like I was complaining even more. Hope your Cipro cycle goes well, too! :)<br /><br />Brianne - What an awesome name for a blog! :) Great minds think alike! <br />It was scary, especially for me because it happened at work and I didn't want to tell any of the adults around because there were so many kids around, didn't want anyone to panic.Colleenhttps://www.blogger.com/profile/18246468485698360524noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-61879362038318936212012-01-08T02:36:32.426-06:002012-01-08T02:36:32.426-06:00I just ran across your blog from cystic life but I...I just ran across your blog from cystic life but I can totally relate to that scared feeling! I didn't cough up blood for the first 20 years of my life. The only time it was even in my mucus was when it drained down from my nose. Then one day I woke up with this strange cough that I had never felt before like you explained and I would clear my throat and I could feel something runny moving around. When I ended up showering that got my cough really going and I coughed up straight blood. Super scary & not a fun conversation to have with my Mom and doctors. They just had me not to HTS and my vest and I did a round or orals. Thankfully it hasn't happened again!!<br /><br />Also funny thing... You & I have pretty much the same blog title!Brianne Houstonhttps://www.blogger.com/profile/15222460726088405842noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-29876873658769935382012-01-07T22:09:45.457-06:002012-01-07T22:09:45.457-06:00Hi Colleen, I am also taking a course of Cipro, s...Hi Colleen, I am also taking a course of Cipro, so we can be metal mouths together =). It's SO annoying that you can't take the med with milk or yogurt, because I have yogurt for breakfast every AM. It's totally ruining my eating schedule!<br /><br />The first time I had hemoptysis, where I coughed only blood, I was out at a bar with my hubby. We got in the car to leave at about midnight and I got this overwhelming cough and urge to spit...and tons of blood came out, it was everywhere! I was yelling "call an ambulance!!!" between spits - I had NO clue that this would ever be a symptom of CF - I had never heard of it. Some guy came out of his house and freaked out and went back in to bring me towels. It was SO embarrassing!! By the time the ambulance arrived, it had all stopped, but there was at least 1/2 c of blood on the street, on my floor mats, on me....What a night!<br /><br />Good luck on getting that all cleared up!! It helps me to put frozen peas on my chest if I am getting the 'urge'. I'll be thinkin' of ya!Laura Mhttps://www.blogger.com/profile/02784867864901259358noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-41863162679174641002012-01-07T16:59:06.473-06:002012-01-07T16:59:06.473-06:00Look like the blood thing is going around. I'v...Look like the blood thing is going around. I've had to bouts of blood since the New Year started. Backing off treatments is smart, just be sure to clear your lungs as soon as you can :)Anonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-23159721982689127382012-01-07T14:45:23.526-06:002012-01-07T14:45:23.526-06:00Thanks Inhaling Hope, [mkg] and Megan for your kin...Thanks Inhaling Hope, [mkg] and Megan for your kind words. I know I'm not the only one who's experienced this, but that's crazy that we've had this happen so recently. <br /><br />Megan, as far as I know, I don't have to see my doctor anytime soon - bummer though, because I'd love to finally meet you in person (3 feet away). :-) I will be there on Jan. 16th to see Dr. Ismail though, when are you going to be there?Colleenhttps://www.blogger.com/profile/18246468485698360524noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-29781880362271141732012-01-07T13:10:55.560-06:002012-01-07T13:10:55.560-06:00Are you being required to see your doc at the next...Are you being required to see your doc at the next CF appointment? If so, we'll be there together lol.Meganhttps://www.blogger.com/profile/09857757026387771028noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-85604642581230573712012-01-07T13:10:00.620-06:002012-01-07T13:10:00.620-06:00I just had this happen on Dec. 29th as well. It wa...I just had this happen on Dec. 29th as well. It wasn't straight blood but it was more blood than mucus EVERYTIME I brought something up. I am doing the same exact regiment as you are right now. I'm about halfway through my 14 day run of Cipro. I felt the exact same way you do though...100% fine. Now that I'm on the cipro and Cayston, however, I'm feeling like crud - I take it to mean the antibiotic is working. I'm sorry that you had this happen - it's one of the scariest things in the entire world to me. I hope the cipro takes care of it for the two of us and neither of us have a recurrence of this! I'm keeping you in my thoughts and prayers!Meganhttps://www.blogger.com/profile/09857757026387771028noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-10276759823538651322012-01-07T13:01:43.849-06:002012-01-07T13:01:43.849-06:00compliance still counts... taking a rest is being ...compliance still counts... taking a rest is being compliant dont let him kid you! keep it up![mkg]https://www.blogger.com/profile/00857444180589760237noreply@blogger.comtag:blogger.com,1999:blog-4957022463353443812.post-11634359162199043112012-01-07T12:44:18.769-06:002012-01-07T12:44:18.769-06:00I JUST had this happen to me in the beginning of D...I JUST had this happen to me in the beginning of December. It is so weird because it is exactly what happened to you...coughed blood for the first time ever and of course at work (the worst!), called the doc and went right back to helping the kids, felt 100% fine CF wise and had no idea where it came from. It really is awful and terrifying! The doc thought mine was from moving a plug that tore the airway, but who really knows. Anyway, I hope you feel better soon. Our experience sounds so similar and after that episode I have had no problems and still feel really healthy so hopefully you will follow that same course.Inhaling Hopehttps://www.blogger.com/profile/10487999036810367535noreply@blogger.com