Thankful November, Week 5

This is my final thankful November week. If you'd like to see the previous weeks, follow the links (1, 2, 3, 4). These are in no specific order, just whatever I can think of for the day, no matter how big or small.

24) I love being an aunt! We have the three cutest nephews around and yesterday we got to spend time with them. Isaac (2) wasn't feeling well because he's teething (poor guy!), but he even his 'evil eye' was still adorable! And then we have two more nephews, brothers Cole (3) and Liam (6 months). Cole is getting so big, and learning & talking so much more. Liam was passed around all day and ended the evening zonked out on my chest - it was so precious! I love spending time with our nephews and can't wait until we have our own kids, so we can watch the cousins all play together. :)

25) Cooperative, involved, supportive parents of my students! I had several dealings with uncooperative, under (or non-)-involved and un-supportive parents today and that just makes me realize how thankful I am for those that care...and show it! Teaching is not babysitting. Teaching & learning do not stop (or only happen) at school! We have to work together to do what's best for a child. That means helping with homework, holding their child accountable for their actions, coming to parent/teacher conferences, field trips, etc. Supportive parents rock! 

I came across this article, called Parents Need to Be Reminded That Teachers are People, Too, posted by a fellow teacher and really enjoyed it! I really wish I could share it with my students' parents. So if you're a parent, or think that teaching must be so easy, go ahead and read that article. Also, come work with me for a week and then see what you think! :)

26) I am beyond thankful for the CF community tonight! Chapter 4 of our Day in the Life video series came out tonight (it's my favorite one out of the five) and I am overwhelmed (in a good way) with the amount of positive comments, blessings, encouragement, "likes" and shares - it's a wonderful feeling! THIS is the exact reason I did these videos. I want to inspire others with CF (or those who know someone) to have a more positive outlook on their disease. Realize that it IS possible to live a "normal" life as long as you take care of yourself.
I'm also thankful that Tim did these videos with me! I think it's really important for the CF community to hear the perspective from a spouse. He's the one that keeps me going! Even though he might not have to remind me everyday to do my treatments anymore, our relationship and our future is my motivation to be compliant and be as healthy as I can. Thank you honey, you're the best!! :-)

27) Four day weekend!! Although we're going to be pretty busy this weekend, I love the fact that it's four consecutive days off with Tim. I hope we're able to get a lot done in our spare bedroom and I'd love to bust out the Christmas decorations!

28) I'm thankful for a hard-working, super-handy husband! We got a good chunk of items accomplished today in our spare bedroom - second coat on the walls, I repainted the baseboards and Tim installed a ceiling fan and two pot-lights. I really wanted to keep going, but it was time to stop for treatments and dinner. I'm also glad that we're not stressed out about trying to have a fancy meal this evening, especially because we're not fancy dinner kinda people. We've decided to not make dinner ourselves, that we're going out to eat = no dishes or cleaning! HAPPY THANKSGIVING!

29) Today I'm thankful for friends! Our friends Karissa and Ryan were down in our neck of the woods visiting family for Thanksgiving so they decided to stop over at our house for a little while. It was so good to see them. Since we moved last year, we're about three (or more) hours away from all of our friends from college, so its tough to see them often. I appreciate that Ryan and Karissa took time out of their family weekend to come visit. :)

30) Last, but definitely not least, I'm thankful for KALYDECO! I haven't felt the best for a few weeks this month, and I wonder how much worse I would have felt without Kalydeco helping my lungs and body. I'm thankful that its having such a positive impact on my body and that it will help prolong my life. I hope that next November I'm able to be thankful that more of my CF friends are on something that helps them this much, too!

Thankful November, Week 3

Each day of November, I'm going to take some time to recognize at least one thing I'm thankful for, no matter how big or small, then I'll post them at the end of the week. Go here for the first week, and here for the second week.

9) I'm thankful for understanding friends. Today, we spent the day with our friend, Tony because he lives about five minutes from where we're doing our CLIMB tomorrow. This evening, another one of our friends, Chris, came up to hang out with us, too. The guys decided they wanted to go out to an arcade bar, and I decided I was going to call it a night - and I didn't get any crap from them this time! They understood that I wasn't feeling well and wanted to catch up on my sleep, especially before a big day and I just really appreciate that! I also love that Tony was asking me all about how I've been doing and everything I've been taking, like my Kalydeco. He works as an athletic trainer at a high school and is very health-conscious (he's completed TWO Iron Man events!). We compared digestive enzymes (mine are way more powerful!) and he asked lots of questions about how K has been helping me. I love educating others more about my CF, and I appreciate that he cares enough to ask. And thank you, Chris, for letting me sleep! :)

10) "I'm alive and well." Today, Tim and I completed the CF CLIMB! And although I'm in the middle of a nasty cold/sickness/infection - whatever it is - I was reminded that I'm still doing well. I'm still well enough to complete a physical challenge such as climbing 58 flights of stairs. I'm very thankful to be as healthy as I am today. Today was also a huge reminder for how much exercise is good for my health. I'm really hoping I can get back into an exercising routine to make myself even healthier. :)
I heard this song on the radio a week or so ago and I can't get enough of it! Here's my favorite part:

"But not me, I'm alive

And today you know that's good enough for me

Breathin' in and out's a blessin' can't you see

Today's the first day of the rest of my life

And I'm alive, and well.

I'm alive, and well." 

~I'm Alive by Kenny Chesney & Dave Matthews~

11) Today I'm thankful for motivation, especially from my CF friends! After posting about our CLIMB, I got a lot of awesome feedback, and it made me want to do more. I miss the feeling of setting a fitness goal and the best part - the feeling I get after I accomplish it. So today I set a new goal and that's to run another 5K. But not just any 5K - this one is the Rock CF River (half marathon or) 5K in Michigan, put on by a great motivator, and fellow CFer, named Emily Schaller. Today I learned that several CFers that I've 'met' online from around the country are all coming out to either run the Half or 5K, and I'd love to join them. So my motivation for this winter is to get my butt back in shape for this race at the end of March! :-)

12) I'm thankful for the Cystic Fibrosis Foundation and anyone and everyone who has ever donated to them! Without your monetary support, I would not have many of the medications that I take today. Nearly 90 cents of every dollar donated to the CFF goes directly to CF research and education. That research (which is extremely expensive) is for all the new medications that go to years of clinical trials before becoming available to patients. Read this article to learn much more about the CFF and how far they've come - it's a great read! THANK YOU, THANK YOU, THANK YOU!!!! You're helping to keep the CF community alive! :-)

13) I'm thankful for a HUSKIE victory tonight!!! GO NIU!!

14) I'm thankful for the roof over my head! I love our new house and we're very lucky to be able to own our own home. It's an awesome feeling to finally not be renting anymore, and to be able to do whatever we want to our house.

15) Tonight, I'm thankful for YOU, that's right, you, reading this blog right now! Without you (the readers), there'd be absolutely no point in blogging. I love knowing that people care to read what I have to say, whether it's about my CF, teaching, or just life in general. I hope that with this blog, someone somewhere is connecting with what I have to say and not feeling like they're the only one out there. I hope that someone somewhere is learning about CF through this blog. I hope that someone has benefited/gotten some advice from any of my posts. Just like the CF Living videos, I do this blog not only to raise awareness about what CF is and how I deal with it, but also to hopefully be that resource that someone needs. I was there once and I was looking for something like this - to tell me I'm not going through this crazy thing called cystic fibrosis alone - and I hope that I can be that for someone else. :)

16) Today, I'm thankful for weekends. Tim and I are enjoying a nice relaxing day filled with errands this morning, a late lunch, and a lovely nap on the couch! It's really nice not having anything planned this weekend, finally, and to be able to spend some relaxing, stress-free time with my husband. :-)

Positive Thoughts Thursday: K, Tim and Cysters & Fibros

To start off this blog today, I googled "thankful quotes" and these caught my eye:

"I'm thankful for laughter, except when milk comes out of my nose." ~Woody Allen

"Some people are always grumbling that roses have thorns; I am thankful that thorns have roses." ~Alphonse Karr

"I'm thankful to be breathing, on this side of the grass. Whatever comes, comes." ~Ron Perlman

• I'm so happy, and lucky, to be able to say that I've been on Kalydeco for a week now! I'm still journaling how I've been feeling day to day, but I'll post several days at a time now instead of one each day, just because the changes are so minor. Overall, I'm not feeling too different from before I started except for the random rattly chest & thick mucus fits/moments throughout my day. And I really do mean random - they come out of no where!
• I'm so thankful today, and everyday, for an amazing, hard-working husband! Since we bought our house a little over a month ago, he has been working so hard on it! Yes, I try to help him with projects, but home improvement isn't really 'my thing'. I'm the 'deal with the people' & accountant of our relationship, haha! 
• I love having access to the internet. I have met so many amazing people through the online CF community, I consider some of them to be my friends although we've never met in person. It's such an amazing experience to be able to talk and get to know someone who understands what you're going through, when you would have probably never have met that person if it wasn't for the internet. :-)

CF Awareness Month Blog #29 - My Wish For CF

"My wish for you

Is that this life becomes all that you want it to

Your dreams stay big

Your worries stay small 

You never need to carry more than you can hold

And while you're out there getting where you're getting to

I hope you know somebody loves you

And wants the same things too

Yeah this, is my wish." 

~Rascal Flatts~

I love this song by Rascal Flatts (one of my favorite groups), and I really think it applies to this blog topic as well. Of course we're all wishing for a cure to be found for Cystic Fibrosis! That's the whole point of spreading awareness, donations, Great Strides, etc.

But in the meantime, I feel it's very important for those of us affected by this disease to stay as positive and hopeful as possible. I know that it's not easy everyday, but we cannot let this disease define who we are or negatively take control of our lives. Look into your future and plan for it, live your life!!! Who says that you can't do what other people do? CFers do it all the time!

And remember that there are so many people that love and support you!! Whether it's your family, friends, co-workers, or members of the CF community, we're all in this together! So until we reach that day that CF does stand for Cure Found, we need to remain positive, strong, happy, grateful for the life we have, and keep spreading awareness and raising money to find that CURE!

CF Awareness Month Blog #27 - Inspirations

See my blog below, there's a huge inspiration for me! I am really inspired by fellow CFers who are totally kicking CF booty! They motivate me to better myself and my health each and everyday. Also CFers who have lost their life fighting this disease. They make me want to prove that I can still live a full life despite having CF. I'm also inspired by CF moms - because not only are they taking care of themselves & their CF, but they're also proving that they can carry and raise a child(ren) at the same time! To me, that's pretty inspiring! I hope that one day I can be an awesome CF mom, too. :-)