Friday, November 8, 2013

Thankful November, Week 2

Each day of November, I'm going to take some time to recognize at least one thing I'm thankful for - no matter how big or small, then I'll post them at the end of the week. Go here to see the first week. I should also mention, that these are not in any specific order, other than one thought per day.

3) Dr. Maria Dowell, my CF doctor! She is AMAZING! I had a wonderful peds doctor, but I felt that as soon as I moved to the adult clinic, that I was finally in charge of my own health. Dr. Dowell helped me realize that I was in charge of my CF, not that CF was in charge of me. I thought there was no way to gain back lung function that I had lost. She opened my eyes to see that if I took the job of taking care of myself seriously, then I could fight back at CF, and that's exactly what I've done over the last six-seven years since being with her. Dr. Dowell gave me the kick in the ass that I very-much needed to keep myself healthy for as long as possible! She is full of information, extremely understanding, and is a great person to talk to.  I know that when I see/talk to her, she has my best interest in mind.  I look forward to my appointments with her several times a year, not just to see how my health is doing, but just to sit and talk with her. I appreciate, more than I can express in words, everything that she has done for me, and I hope that we can maintain this great relationship for years to come!

4) Speaking of amazing people, there's my husband, Tim! He's the second 'kick in the ass' that I needed to wake myself up and live my life. To be honest, the first day I met Tim, I didn't have this "oh my goodness, he's the one" feeling, and he was actually the one who pursued me (read about how we met, here). But a few months later, after talking to him one night online, I said to myself, "I'm gonna marry this guy!" and the called my best friend to make sure I wasn't going crazy! Haha!
Here we are seven years later and still as happy as can be. Tim is perfect for me. He laughs at my stupid jokes, and I laugh at his. He 'kept me in line' in college with my healthcare, which motivated me to be the healthiest version of myself, for him. He'll go along with me when I sign us up for 5Ks and stair climbs, and usually beat me. :) He puts up with my excess mucus like a champ and rarely ever complains. ;) He is supportive, a listener, understanding, open, happy, and could I ask for anything more??

5) Today, I'm going to go with music and the ability to listen to it (I think it's something we take for granted). Without my ability to hear, I'd miss out on all the beautiful and fun music that I like to listen to. There are some days where music just gets me through. Its something I enjoy listening to and singing along with, especially country music. I love that songs are powerful enough to bring me back to a specific time and place, and bring back so many memories and emotions. I love that there are different types of music and like to switch it up a bit depending on my mood. Music is good for my soul. :-)

6) I'm thankful for the opportunity to shoot the Day in the Life Videos with! When I was a teenager, hating and trying to deal with my CF, it was videos just like these that I was looking for! I hope that by participating in these videos, and sharing my story, someone somewhere is getting the little pick-me-up, motivation, advice and/or information that they need to keep themselves going! I never thought I'd be able to do something like this, and it was so fun making the videos! The cfliving people are the best! :-)

And if you haven't seen it yet, here's the latest video on routines & goals. I thrive on routine and schedule, although I still know how to be flexible when I have to be. Having a routine and setting goals for myself keeps me motivated and on track with all of my treatments! Just so happens that today is my 250th day of 100% compliance....haven't missed a vest or neb in 250 days!!

7) Today I'm thankful for technology. I love having my blog, Facebook page & groups, etc, to connect with family, friends and other CF patients around the world. I've met so many wonderful people who I would never have met if it wasn't for online communities and the internet. Today, I'm especially thankful for technology because I'm starting to catch a cold/virus/something, so I was able to email my doctor & nurse this morning to call in some Cipro for me. It's amazing that I'm able to get in touch with my doctor in Chicago and get the drugs I need the same day! I'm also thankful for the advice & information I get from other CFers I'm able to connect with through social media. Several suggested doing sinus rinses when catching a cold (and regularly) to help with sinuses. I bought one while at Walgreens picking up my Cipro and tried it this evening - what a WEIRD feeling! I still feel stuffed up on one side, but I'll keep at it over the next few days to see if it helps relieve my cold a bit faster. Thanks everyone for your help! :)

8) I'm grateful to have a 'recovery' day on Monday. I've got Monday off due to Veteran's Day, and I can already foresee that becoming a very lazy day. I've felt pretty crumby all day today and am looking forward to finishing up this third treatment so I can get to bed. Tomorrow we're heading up to Chicago to hang out with some friends and then we have the CF CLIMB on Sunday! Tim and I will be climbing 58 flights of stairs. My goal is to finish in under 30 minutes, and I'm really hoping this cold doesn't slow me down! I am thankful though, that I'll have Monday of to be completely lazy and get my schoolwork done in my PJs...and rest my legs!

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