Sunday, October 20, 2013


Call us crazy, but Tim and I just signed up (and paid) to climb 58 flights of stairs on a Sunday morning! 

Why, you might ask?? Well to support the Cystic Fibrosis Foundation, of course!!! I received an email from the Foundation the other day informing me about this event and it piqued my interest. It's downtown Chicago, so I thought I'd get more of my family to sign up (not one yet....they must be too scared ;) ) and I've been exploring lots of Great Strides events this year, what's one more fundraiser for the year? Plus, they were having a promotion where it was only $10 to sign up instead of the typical $45 - can't pass up a deal like that! It's going to be a physical challenge, but I won't let me CF stop me on this one.

And with the new CF regulations & guidelines, more than one CF patient can attend indoor events sponsored by the CF Foundation at their own risk. Here's the disclosure from the event's website:

B. CEPACIA AND INFECTION CONTROL POLICYBecause of risks to people with cystic fibrosis (CF), only one person with CF may be invited. Also,individuals who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend any Foundation events/meetings. These requirements are because CF germs can be passed between individuals who have CF. Some germs in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. CF germs are not a risk for otherwise healthy individuals.

Despite this policy, individuals with CF might choose to attend events or meetings without informing the CF Foundation or without the Foundation's knowledge. If so, they do so at their own risk. The Foundation accepts no responsibility for any risk to health involved in attendance, or in any social contact between persons with CF. For more information, please visit

I'm glad that they're not enforcing the strict regulations of only one CFer attending an indoor event. I feel like a lot of people in the CF community were really turned off by this, and I think it's fair that we're able to make our own decisions on things like this. I understand they're doing it to keep us safe, and also to cover themselves, but I think that CF adults should be responsible and mature enough to make their own decisions. With that said, I am aware that at least one other CF patient will be there, so I will wear my pin proudly to identify myself and be sure to keep my distance.

Finally, my goal for this event is to raise at least $200. If you'd like to donate to my CF Climb, please let me know. My page hasn't been set up yet on the CFF website, but as soon as it is, I'll post it on here. Right now, I'm just collecting any cash or check (made out to the Cystic Fibrosis Foundation) donations to submit on the morning of the Climb.....which is only three weeks away! I better get these legs into shape!!!!!

1 comment:

  1. I'm looking forward to the climb, well cheering Andrew on at the climb... I find the whole CF policy interesting. First, It weird Cepacia is the only bug they seem to worry about. Also, they have no idea how many CFers attend functions. And how do they choose the 1 CFer that is allowed to go... just odd. I understand about the safety and legal issues, but still it is pretty flawed.