I'm sorry for the long delay in posts, I'll make up for it soon, I promise! But right now I've got another friend in need of some thoughts, prayers, kind words, donations, whatever you can give at the moment. My friend, Cheriz, has a friend, Laura, who is in great need for a lung transplant.... like, yesterday!
Like Cheriz says in her blog, its hard to think about or even talk about it sometimes, but the reality is: this could be me one day. There may come a day when CF gets the best of my lungs and the only option to extend my life would be to trade these mucus-soaked ones for a fresh new pair. Sounds easy, right? Not quite. Its a long, painful, grueling, and expensive process!
PLEASE follow this link (http://www.cheriz.org/2014/01/calling-all-who-care.html) to Cheriz's blog to read about everything newly-married Laura is going through at the moment and see if there is any way you could help her out. Thank you!!!
Friday, January 31, 2014
Tuesday, January 7, 2014
Here's 102 blog posts from this year summed up into one. This year was full of exciting adventures for Tim and I, the most exciting being that we finally purchased our first home!
- At the beginning of this year, I was presented with the possibility of having CFRD. Thankfully after meeting a wonderful endocrinologist in Chicago, he taught me how to adjust my diet to keep my sugars in check without having to have insulin injections, yay!
- In February, unfortunately I had to reset my compliance count due to lovely mail order pharmacy mix ups. I did, however, proudly complete 100% of my treatments for 352 days!! I reset my count on March 1st, which puts me at 312 days today!
- Also in March, we celebrated Tim's great grandma's 99th birthday, learned about the new CFF regulations (which caused a huge uproar and debate among CFers), and we got the ball rolling on the CF Living video phone interviews and plans!!
- April was a busy month! Tim and I shot our CF Living footage which was harder than I thought, but SO rewarding! I attended another Great Strides in DeKalb, the TOBI Podhaler was released, our kitten, Ozzie, was born, and I started taking the best thing ever = PROBIOTICS!.
- May was pretty uneventful, aside from me finishing up my first year of teaching! Tim celebrated his 27th birthday and we were able to spend some quality time with our adorable nephew, Isaac.
- In June, we finalized our first house mess, and found a house that we both loved and went under contract on it. We traveled to Tennessee to meet our newest nephew, Liam, and spend time with family. Tim also kicked my butt in Brett's Run!
- July was a busy, fun-filled month! I attended my best friend's bachelorette party, spent lots of time with family, brought Ozzie home, went to Country Thunder and became a home-owner!!
- Our first chapter of our Day in the Life series finally came out and I was so surprised and humbled by all of the amazing and supportive feedback. I also started my second year of teaching - this year in first grade. And of course, started taking Kalydeco on August 30.
- In September, Tim and I continued to work on our house, we did our annual camping trip with his family which is always a great time, and we attended the most love-filled wedding I've ever been to - Jessie & Jeremy's wedding. :-)
- October is always special to me because its our anniversary month. We celebrated our third anniversary this year and we're not just married anymore, but we're now married home-owners! Tim and I also went to the Peoria Great Strides which was excellent! I was asked to speak there and we also met my blogger, CF friend, Cheriz. Finally, I had my first post-Kalydeco clinic visit where I gained 6lbs, my FEV1 increased by 5% and my small airway lung function went up by 18%!!!
- In November, Tim and I conquered 58 flights of stairs at our first CF CLIMB! Then I signed us up for the CF Rock Rivers 5K in Michigan in March, put on by the lovely Emily Schaller.
- December was full of ups and downs, and sadly ended on a very low note. We lost our great friend Jeremy on December 31. We celebrated his life in Ohio with Jessie and his family the first weekend in January, and I'm very glad we were able to attend to say our 'see you laters'.