Positive Thoughts Thursday

Sometimes I feel like I use this blog to vent/complain about things going on in my life, and I don't want to continue with all of that negativity. So each week I'm compiling a list of positive, happy, lucky, fortunate things that are going on in my life or anywhere around the world.

• I can't believe I didn't post this when I first heard about it! Another wonderful advancement in CF treatment! It's a powder inhaled form of the antibiotic TOBI (which I nebulize every other month) -- I might have to bring this up with my CF doctor at my next clinic visit.
• Tim and I took part in something this weekend that's very meaningful to me and I cannot wait to share it with you. It'll be shared this summer.
• One of my students called me "the funniest teacher" today! It made me smile. :-)
• I know I've been sharing this one a lot, but I'm very excited. My first Great Strides event of the year is on Saturday! 

Amazing, Fantastic, Wonderful CF Drug Advancement Today!!!

Chances are you've already heard/read about the wonderful thing I'm going to post about if you're on CysticLife or you're my Facebook friend, but that's okay! It's too spectacular to not read it again!

This is how I feel right now!!

The FDA approved Kalydeco, the new drug that targets the underlying cause of CF in patients with the G551D mutation (ME!) - about 4% of the CF population!!!!! I'm currently 'too healthy', according to my CF doctor, to receive the drug right now, but that is a-okay with me. :-)

Here's what the Cystic Fibrosis Foundation had to say about it. 

Here's what the FDA had to say about it.

Here's what Vertex (the company who is producing the drug) had to say about it.

It's such an amazing feeling to know that all of the clinical trials/studies have definitely paid off! But it is SO important to keep spreading awareness and raising money so that the other 96% of CF patients can see their new medication come through the pipeline and get FDA approval, too. There are several clinical trials going on right now for a combination drug for those with CF with the most common mutation, Delta F508.