2013

Here's 102 blog posts from this year summed up into one. This year was full of exciting adventures for Tim and I, the most exciting being that we finally purchased our first home!

• At the beginning of this year, I was presented with the possibility of having CFRD. Thankfully after meeting a wonderful endocrinologist in Chicago, he taught me how to adjust my diet to keep my sugars in check without having to have insulin injections, yay!
• In February, unfortunately I had to reset my compliance count due to lovely mail order pharmacy mix ups. I did, however, proudly complete 100% of my treatments for 352 days!! I reset my count on March 1st, which puts me at 312 days today!
• Also in March, we celebrated Tim's great grandma's 99th birthday, learned about the new CFF regulations (which caused a huge uproar and debate among CFers), and we got the ball rolling on the CF Living video phone interviews and plans!!
• April was a busy month! Tim and I shot our CF Living footage which was harder than I thought, but SO rewarding! I attended another Great Strides in DeKalb, the TOBI Podhaler was released, our kitten, Ozzie, was born, and I started taking the best thing ever = PROBIOTICS!.
• May was pretty uneventful, aside from me finishing up my first year of teaching! Tim celebrated his 27th birthday and we were able to spend some quality time with our adorable nephew, Isaac.
•  In June, we finalized our first house mess, and found a house that we both loved and went under contract on it. We traveled to Tennessee to meet our newest nephew, Liam, and spend time with family. Tim also kicked my butt in Brett's Run!
• July was a busy, fun-filled month! I attended my best friend's bachelorette party, spent lots of time with family, brought Ozzie home, went to Country Thunder and became a home-owner!!
• Our first chapter of our Day in the Life series finally came out and I was so surprised and humbled by all of the amazing and supportive feedback. I also started my second year of teaching - this year in first grade. And of course, started taking Kalydeco on August 30.
• In September, Tim and I continued to work on our house, we did our annual camping trip with his family which is always a great time, and we attended the most love-filled wedding I've ever been to - Jessie & Jeremy's wedding. :-)
• October is always special to me because its our anniversary month. We celebrated our third anniversary this year and we're not just married anymore, but we're now married home-owners! Tim and I also went to the Peoria Great Strides which was excellent! I was asked to speak there and we also met my blogger, CF friend, Cheriz. Finally, I had my first post-Kalydeco clinic visit where I gained 6lbs, my FEV1 increased by 5% and my small airway lung function went up by 18%!!!
• In November, Tim and I conquered 58 flights of stairs at our first CF CLIMB! Then I signed us up for the CF Rock Rivers 5K in Michigan in March, put on by the lovely Emily Schaller.
• December was full of ups and downs, and sadly ended on a very low note. We lost our great friend Jeremy on December 31. We celebrated his life in Ohio with Jessie and his family the first weekend in January, and I'm very glad we were able to attend to say our 'see you laters'.

I feel like things can only go up from here and I need to keep that positive attitude. Here's to a happy, healthy, productive and positive 2014!!!

Thankful November, Week 4

Each day in November, I'm taking the time to post something that I'm thankful for - no matter how big or small - then I'm posting them at the end of the week. Click these links to see week 1, week 2, and week 3.

17) Today I'm extra thankful for the roof over our head! There were a lot of severe storms that tore through the Midwest today, and thankfully they stayed clear of our town and house.

18) Pandora radio - sounds silly and insignificant, but I love it. I don't want to have to pay iTunes a dollar per song to download (legally). I love that I can change the station depending on my mood (ie: Michael Buble Christmas - I'll have to bust that one out soon...after Thanksgiving!) and that it introduces me to new songs. If you haven't caught on - I love listening to music! :-)

19) I'm very happy to be done taking my Cipro! Although I'm still not feeling 100% (I need to get better about doing extra treatments), I'm just glad that I'm not taking Cipro anymore. I am also happy to report that this was the first time, that I can remember, that it didn't give me huge tummy troubles! I'm wondering if that's because I'm now taking daily probiotics....which leads me into tomorrow's post.

20) I'm super thankful that someone created probiotics!!! They've completely changed my life! I am no longer extremely gassy and/or bloated daily....or ever! I feel like a "normal" person as far as that's all concerned! I now go to the bathroom once...did you read that CFers, ONCE a day and feel SO much better! If you are not taking them, I strongly  recommend talking to your doctor about what benefits they could have for you!

21) Modern Medicine/Research - I'd probably be dead if it weren't for all of the advances in medicine and research today. I know that sounds terrible, but it's true. If I were born with CF 50 years ago, pretty much all of the medication I take wouldn't be around. I'm very, very lucky and thankful to have access to the medications, and team of wonderful doctors and nurses, that I need.

22) I'm thankful for a night out. I'm not usually one to go out much, I tend to be a home-body, but I'm glad I went out tonight with some teacher friends. We had a lot of laughs and a great time. :-)

23) Today I'm especially thankful to have heat! With it being about 30 degrees today, I'm very glad that we have that luxury. And congrats to my cyster, Megan, who ran her first 5K today in this terrible weather!! So proud of you! :)

Probiotics!

**Warning: This post may have "TMI" for some readers - including talk about gas and poop.**

*Also, I am not giving medical advice, just telling you what has worked for me. Please consult your doctor before trying anything new!*

I started taking a daily probiotic (Target generic brand) shortly after my last clinic visit. I had talked with the nutritionist about what and how much I've been eating lately, and I how I was very discouraged because I wasn't gaining any weight. My whole life I've struggled with digestive issues, I think sometimes even more so than lung issues. I've always gone #2 at least twice a day growing up and I've always been very bloated and gassy. It's been extremely uncomfortable and embarrassing, but I just thought, "this is CF". And if you know me personally, or any other CFer (or you've read about it online), CF poop is not pleasant (loose & stinky)...especially when you're going more than once a day.
Here's a list of symptoms according to the CFF website:

People with CF can have a variety of symptoms, including:

• very salty-tasting skin;
• persistent coughing, at times with phlegm;
• frequent lung infections;
• wheezing or shortness of breath;
• poor growth/weight gain in spite of a good appetite; and
• frequent greasy, bulky stools or difficulty in bowel movements.

So, since that was on the list of symptoms, I assumed that all CFers had this problem, and that it was just going to have to be my 'normal'. Days when I went #2 once a day was like heaven!

Anyway, in April when I was talking to the dietitian we were trying to think of what I could do to help my tummy troubles and help keep weight on (because most of what I was eating was just coming out). She asked if I was trying to snack frequently and eat smaller meals - yes, I was already trying that. She asked if I was on an anti-acid (ie: Prevacid, etc) - yes, I'd been on one for quite some time. She asked if I was taking a daily probiotic -- No....that was something new to me! She was excited that there was finally something different for me to try. Probiotics help resort the healthy bacteria back into your gut, that could be killed by antibiotics, to help with digestion. She told me to try taking one a day to see if that helps. Oh man does it help!!!! This may sound ridiculous, but I asked Tim the other night, "When's the last time I farted?" Of course we started laughing, but honestly, it's made that much of a difference for me. It was sometimes daily that I could complain about feeling bloated/gassy/uncomfortable. I haven't felt that way in almost two months since I've started taking this! I now only go #2 once a day and it's formed and wonderful. I know it sounds crazy for me to be talking like this (especially if you don't have CF), but if you have CF and/or live with someone who does, you'll totally understand! I'm not sure if I've gained any weight yet (we don't have a scale in the house), but it's wonderful to be feeling better. I'm hoping this summer the combination of eating frequently and going to the bathroom less will help me gain the pounds I need! :-)

I think I should be a spokes-person for Probiotics!!

Positive Thoughts Thursday

First of all, I want to apologize for neglecting to post any positive thoughts over the last month. Tim and I have been through some stressful, crappy stuff over the past few weeks - which is when I should have probably been trying to really focus more on the positives - and I've been feeling pretty crabby lately. Thankfully, I feel like I'm coming around out of that slump a little at a time, and I felt it was necessary to get back into my positive thinking ways...

• A few weeks ago I started taking a probiotic and man, do I feel great! I am less bloated and gassy in general and my bathroom trips have been less frequent. I'm also still trying to monitor my calorie intake and blood sugars to try and stay as regular as possible. I'm hoping the combination of all of these things will help me start gaining the weight back I need.
• Although I have learned quickly that the end of the year is almost (if not more) stressful than the beginning of the year as a teacher, my class and I have had a lot of fun days in the past couple weeks. We went bowling (supposed to go to the zoo, but it was rainy and cold); we went to the YMCA where the kids were able to swim and play in the gym; and just yesterday we had Play Day where we travel from station to station outside all afternoon. There was a bounce house, inflatable slide, inflatable obstacle course, a water station, snow cones, tug of war, dodgeball, and sack/relay races. I am so happy that I'm healthy enough to run around with my kids and be able to participate in all of this fun stuff with them! :-)
• Tim and I are house hunting! Since I have found a job that I love and Tim's now in a stable job, and we're closer to Tim's family, we're looking to buy a house! This is a huge goal of mine (to be a homeowner) and is one of the things that I wasn't sharing about a month ago when I mentioned I was working towards one of my goals. We are currently under contract on a house and are waiting to close (this has been the stress of my life for the past few weeks because it is NOT going according to plan, but I'm keeping this post positive!). I'm hoping soon that I'll be able to post that we're officially homeowners. 
• Last Saturday was my second Great Strides of the season and it was so much fun. We had family on both sides show up to walk on the chilly, windy but sunny day. After the walk, Tim's sister Katrina,
  Tim and I played on the playground with our nephew, Isaac for a while -it was so fun!! I can't believe how big he's getting! See the adorable pictures below. :)
• Kitten update: The kittens are 4 weeks old today! We were able to see them while we were in town for Great Strides last weekend. They are hilarious. Their eyes are open and they're learning to walk, but they stumble all over the place. They are also learning how to play together which is hysterical! I think we sat there for about 2 hours just watching them. 
• Oh, how could I forget?? I'm an aunt to a third nephew!! Tim's other sister, Elise, had her second son, Liam, on Monday, May 6th! He's soooo cute and I cannot wait to go see him in June to celebrate his big brother's third birthday! :-)
• I've started running again and boy did I miss it! A couple days ago I ran 2.4 of my 3.5 mile route! :) Tim and I signed up for a 5K in June (the same one I did for my first 5K last year) so I'm prepping for that. I'm so happy that my body hasn't lost a lot of the endurance I had in the fall since I took the winter off. 

3 1/2 week old kittens

This is our little guy - still haven't agreed on a name yet for him

My favorite picture from Great Strides! Aunt Colleen & Isaac! :)

Running around the park with Isaac

Tim and I just hanging out on the dinosaur!

Weeeee!

He loved peeking through that thing

Haha...that slide was painful on our hips...I think we were a little too big!