When we got back last night, I did my regular round of treatments with all of my nebs, but I'm resetting the count for today since this is the first full day that I'm back to doing everything. I made it 215 days without missing a single Vest or nebulizer treatment, except in January when I had my little bought of coughing up blood and I was ordered by my doctor to stop treatments to give my lungs a break. I know it's not that big of a deal health-wise because it's not like I missed them for an entire week, but it just kills me that 215 days of hard work can be thrown away by three little nebulized viles and two nebulizers that got left sitting out. Of course, now my goal again, is to make it another year without missing anything!! - unless directed by my doctor.
|Our new team shirts this year!|
|THIS is the reason your donations are so important to me|
I cannot wait for the day when CF stands for Cure Found and future generations will not have this as their 'normal'. I am in no way trying to complain about the things I do daily to keep myself healthy, again because it is what I am used to. But for those who don't have CF, or are never around it, this is what it looks like. This is why it is so important to me (and for me) to have people make donations to the Cystic Fibrosis Foundation & Great Strides. I would not be alive today if I didn't have all of these medications available to me. These medications would not be available/created if it wasn't for the money donated for research. So thank you to anyone who's ever donated to CFF because you're helping to keep me alive! :-) Please consider making a small donation to my Great Strides Team Page to support the CF Foundation in helping make CF stand for Cure Found!
Finally, this Thursday I have my next CF clinic appointment where we'll be thoroughly discussing Kalydeco as an option for me -- another amazing creation from the donations of people like you! :-)