Right now we're waiting for their pharmacist to put in some paperwork/information through insurance to figure out if/what my co-pay will be for Kalydeco, then we'll be able to set up delivery. She told me that if I don't get a call from them by Wednesday morning, then to go ahead and call them to set it up....Guess what I'll be doing on my lunch break Wednesday?!
I'm really excited to start taking this drug! If you don't know much about Kalydeco, or maybe need a refresher click here. These are my hopes for what Kalydeco will do for me:
- Improve my lung function, maybe get it back in the 90s?!
- Help me gain weight
- Help me with my tummy troubles (although, probiotics have been helping, too)
- Make my body healthier overall for a pregnancy in the future
- Possibly allow for me to cut back on a medication or two... (wishful thinking?! I hope not!)
THANK YOU, THANK YOU, THANK YOU to all of you who have ever donated to the Cystic Fibrosis Foundation to fund the research for this medication!!!!!!!!! BUT, we can't stop here! There are still another 96% of CF patients who don't have this mutation who are waiting for a drug like this to help them out! Please continue to raise awareness & funds for the CFF to fund the research of the many drugs working their way through the pipeline!