Wednesday, February 27, 2013


I feel like all forces are against me right now in completing an entire year of treatments!!!! I am VERY annoyed and disappointed to have to announce that I've had to miss/modify my treatments over the last couple of days because I ran out of meds! I know, I know, how can I run out of meds? It seems so irresponsible, but I have the pharmacy company and the lovely snow to thank for this one.

They won't let me refill my meds too early, and they're really good about sending me reminder emails when I'm due for my refills. I noticed that I was getting low on my Hypertonic Saline (HTS) and Pulmozyme so I went onto their website to get my refills. Also, I've been off Tobi this month, so I'm scheduled to be on it in March, so I added that to my list of meds I needed refilled. Typically when I submit a refill, I receive it in the mail about 2 days later. Well this time, I got a confirmation email from the pharmacy saying that I will not recieve my medications until Tuesday (5 days later!) because they weren't sending express orders due to the "inclement weather conditions". So this meant that I was going to run out of Pulmozyme and HTS before my meds arrived! Damn it!!! Over the weekend, I modified my treatments however I could to ration out the rest of my nebulizers til yesterday.

Well, yesterday when I got home from work, there was still no medication! It was too late to call, so I just figured it would just be another day, so I didn't bother emailing. I got an email this morning saying that my order is still delayed because they are waiting on prior authorization on my TOBI! AHHHH! I'm currently emailing them back and forth begging them to send me my medication tomorrow! Well, it looks like it won't get here until Friday. I'm so annoyed! I was about ONE WEEK away from my one year streak!

I'm not really bothered by the fact that I'll miss a couple treatments (I'll still do my Vest and Albuterol) -- that's not going to have a huge impact on my lungs. I'm more annoyed, if you can't tell, that I have to re-set my counter again!!!! I know it's not the end of the world and that I've been super compliant with my treatments since July of 2011 (I missed a couple in March of 2012 and now this mess), and it's made a great improvement on my overall health, but it's just the fact that I can't cross it off of my list! Guess it looks like I'll be starting all over, AGAIN, whenever they decide to send me my stuff.

Finally, I just wanted to apologize for not blogging very much lately. I feel like there hasn't been much going on that's blog-worthy, but at the same time, I feel like I've been super busy. I've got another "kinder quotes" in the making, so hopefully I'll be able to post that soon. :)


  1. That's so frustrating! I'm sorry! :( But it's awesome that you have been so compliant! You are part of the reason I'm keeping track of how long I've been compliant. Keep up the good work!

  2. Oh, no! Major bummer. Give yourself some grace, it's not like meds are sitting on your frig while you choose to not do them. I say, you ROCK!!