I've debated for a couple days whether to write about what's been going on with me the past couple days because I didn't want to freak people out (I know a lot of my family reads this), but I figured if I'm going to have a blog about how I live with CF, it has to be the good, the bad and the ugly.
Our new years was pretty uneventful, Tim and I just hung out that weekend and it was back to work on Monday for me. The kids were a little tired, but as the week went on they got a little crazier. Luckily it warmed up to be about 50 degrees (in JANUARY, in northern Illinois = not normal, but welcomed!) on Thursday and Friday so the kids got lots of outside time! Thursday morning I was at work, the kids had just arrived, and my breathing started feeling funny - I felt kind of crackly, but really thin crackles: aka: not going to be mucus when I coughed, it was going to be blood. Now, I've coughed up blood (hemoptysis) before, where it's been mixed in with my mucus (streaking), but only maybe once or twice ever in my life has it been straight blood. This time, it was straight blood and it wasn't staying down. I was trying my hardest not to cough as I'm helping my two little guys write in their journals. Since there were several adults in the room, I excused myself to the staff bathroom and got out what I could. It was pretty scary for me because I've never had this happen like this, let alone at work.
I didn't want to tell anyone at work because I think that would totally freak them out. Luckily, about 30 minutes later and several productive coughs, it subsided, and it just turned into streaking. I knew I had to contact my doctor to let her know what happened because that is not typical CF for me. At work, my lunch is at 10:30 (so about an hour and a half after all of this happened), so I emailed my doctor from my phone (YAY for having a smartphone!). I stayed at work, kept my phone on me and emailed my nurse back and forth a couple times during the day to hash out a plan.
My nurse, Penny, told me to back off of my treatments to once a day for two days (to give my lungs a break), then bump it up to twice a day for two days, then 3-4 times a day if I can (to get it all out). I also started an oral antibiotic, Cipro, for 14 days. So Thursday and Friday I just completed one AM treatment, and as I'm writing this, I'm completing my first treatment of the day today. I usually do my HTS (hypertonic saline - nebulizer med - salt water, pretty much) with my AM treatment, but I opted to do my Pulmozyme yesterday morning as to not irritate my lungs even more. I just finished my first treatment of the day today including HTS, and it went okay. There's still a tiny bit of blood in my mucus, but I think it's starting to get better.
The thing that gets me, is that I've been feeling great lately, and this literally came out of no where! I was sitting at a table, helping my students when I just started randomly coughing up blood - kind of scary. Today, I'm feeling just fine, I don't have any increased cough (not more than usual) or any 'sick' symptoms, so I feel weird having to go on antibiotics and mess around with my treatments, but I know it was definitely a smart move to contact my nurse. I also decided to back off of my exercise for this week, to give my lungs a break, but I'm hoping to pick it up again next week. In the meantime, I need to figure out how I'm going to try to fit in an extra treatment or two starting on Monday. I work til 5:30, so my second treatment isn't going to get done until 6:00, so I guess I'll have to do another one right before I go to bed.
Tim's been giving me crap that I have to start my 100% count all over again because I only did one treatment a day for two days! Haha, yeah right! I'm going to keep it up there because I told him I was just following doctor's orders! :-)
I hoping that within the next week, this will all go away and maybe I'll be feeling even better than I do now with that round of Cipro. I hope I didn't scare anyone - really, I'm fine. :-)